Life with my PCEHR

by Charles Wright on July 23, 2012

What secrets I am sharing with my Personal Health Summary, located under one of the menu items on the left side of my NeHRS/PCEHR. (I do wish someone would tell me definitively which abbreviation I should use!)

Today I have news of my adhesive capsulitis in my left shoulder – a diagnosis from my physiotherapist, but yet to be confirmed by a sports physician. It doesn’t feel frozen. It feels rather warmly painful, so painful that we are not getting much sleep, my shoulder and I.

As I briefed the physio this morning, I was acutely aware that I didn’t have accurate details of the various traumatic incidents that this left shoulder had suffered. The rotator cuff injury on the bicycle. When was that, exactly? That desperately unwise decision to move a (not entirely empty) filing cabinet rather late at night. That unfortunate meeting of motor scooter and oil slick at Easter, 2011.

It would be very useful to have these details at hand, but despite the fact that I have employed a personal information manager called Info Select for many years (more recently replaced by Evernote, but I’m still transferring the information), I have never thought about tracking that stuff.

Now that I have a PCEHR/NeHRS, however, I am dutifully recording everything. It seems to be the same sort of obsession which grips people who intall solar energy systems. Once the panels are installed, they start monitoring their electricity consumption to reduce the pay-back period. Mine, by the way, is 5 1/2 years. I wonder what the pay-back on keeping a personal health record might be? It’s possible, I imagine, to increase one’s enjoyment of life, and possibly life itself, by a relatively significant length of time.


J July 24, 2012 at 12:44 pm

PCEHR is the correct abbreviation.

anon July 24, 2012 at 2:59 pm

Seems to me that recording excessive detail in your record is probably getting a bit carried away. Luckily, there was a deliberate decision that health diary notes wouldn’t be visible to clinicians – only those items that fit into a consumer health summary would be visible. So in that sense, you can record as much or as little as you wish. And certainly it’s nice to hear that people are getting value from the system, even if the value is a slightly OCD/obsessive over-recording of information. 🙂

Charles Wright July 24, 2012 at 3:13 pm

I have searched very deeply into my conscience, and I cannot agree that the information I have recorded so far is excessive. It’s important to me, and in the most recent instance, it would have been useful for my physiotherapist. I don’t just rely on my medical advisers for my health.

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